I care , you care.
As the NHS were very good at caring for the patients in front of us
but we don't always take account of those in the family or friends or
social circle of the person that we're looking after and it's really important
for that person to care for their outcomes, for their safety sometimes, that
we really do think about where does this person live, who do they live with, who
helps support them and think about that as part of our care planning.
I care you care is about trying to get people to just change a little bit the way that we
think about delivering care for patients.
I care, you care.
I mean care is an interesting term.
It's a term that we use as professionals, as organisations
but often we hear that for friends and family it's not a word that means anything to them I
don't see myself as a carer I love doing the best I can for my kids
that's what care remains for me being there for I guess being a carer means
that you can't just think about yourself you have to think about who you care for
it's about guiding supporting and ensuring that you do the absolute best
for your child Adam when they need it me I'm not care I'm just a moment just
jack is who he is because we don't know no better
being there 24 hours seven days a week for someone who'd be totally lost if I
wasn't I care you care we know that on average it takes care is about four
years to actually identify themselves and we also know that caring has a huge
impact on the house sometimes is it you're the only person in the world
until you live the life where you live you don't know how hard it is more than
likely going to be looking after Megan until the day I die half the time it can
be it can be stressful you're doing what you do and what she did as well I can't
even go to the loo without you there what you're doing where are you of
course that we asked you down if that's where you're done you know I just go in
the kitchen I could scream but then I go back in and I think that he's my husband
even though he's stopping me doing a lot of things when I have my down days I cry
a lot the distress that you're feeling is is so huge I really go you to talk to
I got used to there's an expectation that this role is going to be undertaken
and I think if you see a carer that starting to struggle with the kind of
burden of the role I think and it's kind of looking out for that and looking and
seeing what happens when you maybe just talk to them again and give them
something else to do so it's kind of just having that awareness of exactly
what you are asking somebody to do next I care you care the top three key
characteristics people need to have in dealing with carers would be kindness
true compassion really truly caring their knowledge and how they use that
knowledge and how they use that knowledge to help us understanding
perceptive warm and have the imagination to understand what your life is like
honestly listen to us even if you think we are
talking nonsense huge patience and a very good year for listening sometimes
things can succeed or fail depending on the success of communication you have to
listen to the journey that they've had so you know carers are going to have
some solutions that it's really important that they are considered when
the secrets of our trainees you make it up as you go along
and you can't do that without you being highly involved and informing that
process to be able to communicate with them and have that communication that
you can that they can give you any feedback and any help otherwise you can
feel alone someone who understands and really listens that makes a difference
and it's just communication just really communicate in where with the whole
family with the patient making sure everybody's involved in every decision
if you ask us how are you then be prepared to have spend a bit of time
dealing with that because we're not okay also I've experienced where I'm trying
to engage and motivate patients by telling their carers a little bit about
what I'm trying to do with them because they're more likely to listen to their
care is because they've built that relationship with them over a much
longer period of time sometimes we need to be mindful that the terminology we
use can be a barrier in terms of the language you use when you communicate
with us we understand possibly 90% of it I think
so many times carers will exclude it because of the medical terminology or
the clinical terminology debts staff staff may use so to ensure that we speak
in a language that they understand and we can communicate these messages
clearly I care you care I think no organization will be being truthful with
itself if we all agree that we were perfect so we always have to strive to
be better it is sometimes in smaller things actually that are the most
helpful for us to give us care a Plake that's where I am at the moment I am
just about playing point the biggest issue that springs to mind is
transitions from ad litem and to a doesn't seem to have gone entirely
smoothly for quite a few young people and parents
you've come across the jewelry mine now biggest fears of carer is what's going
to happen have been tempted me that's what I'm already worried about the idea
that my either of my parents would be alone the children hid in adulthood and
there being nothing out there my biggest fear now is if I found myself
on my own one day I will feel that would be a terrible fear because I'd be on my
own my biggest fear is anything happening to me who would look after
Mike there comes a point when obviously nothing else can be done when I can't
look after anymore us my biggest fear my biggest fear is a
carer is that there is something going on in our child's world that is going to
end in a very serious outcome and if there's something we've missed it would
be even worse if there's something we could have done
for me it understanding that the organization really care for me as a
carer and that truly value my contribution that I can bring as a carer
it is one thing I want to ask to do differently coming out that I care you
care campaign is to really think about carers involvement communicate with them
involve them in care planning involve them in care delivery and get better
outcomes for patients that's what this is all about I care you care
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