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For more infomation >> 農歷四月初八，恭迎釋迦牟尼佛誕辰，見聞獲益，功德無量！ - Duration: 16:44. 
Recently diagnosed with the where to find social support
a hereditary Angie i.e. ad Maya he diagnosis can be stressful
because stress can trigger he attacks the faster you get a handle on your condition
the better this is where solid social support can play a huge role
having others to talk to about your concerns is essential for your emotional well being
social support groups are also a great place to learn tips about preventing and treating attacks and how to take charge of your he symptoms
if you were recently diagnosed with he and looking for social support here's a list of places to help you get started
nonprofit organizations nonprofit organizations like the U.S. hereditary Angie IE team
association caught yeah and its international companion
, II work to raise awareness fund research
and bring people with hate to gather
hot he offers virtual support groups for these people and their family members
the organization also holds fund raising events throughout the year where you can meet other members of the he community
you can also sign up for the virtual haughty a cafe
this gives you access to web and ours breaking news and live chats with members of the he community
here you can also get advice on dealing with insurance
social media a quick search on popular social media sites reveals several groups focused on social support for people with he for example a
search on face book brought up this close to support group with over 2000 members that you can request to join
another heat group the all about he face book group
and the social media group run by the hot yeah are also great ways to connect to other people
dealing with he patient ambassador programs once you decide on a treatment
browse the treatments web site to find out about available patient support programs
many pharmaceutical companies have well organized patient support programs
these can also help connect you to patient ambassadors and community events
patient ambassador programs put you in touch with someone who has experience preventing or treating he attacks
you can chat with these ambassadors or mentors over the phone or via e-mail
talk to them about how they manage their symptoms and anything else that concerns you about your new diagnosis
summer camps children with the need to have support from their peers
summer camps are a great way to give your child something to look forward to
plus it gives them the ability to meet other kids who are going through a similar situation
if you're willing to travel
the hot idea is offering the opportunity to experience a summer camp in Germany that
aims to bring together 100 he campers between 12 and 25 years of age
flights accommodation
meals and activities are taken care of by the organization
that Isetan's are a only responsible for paying a small registration fee
for more information see their registration website camp body creek located near Orlando
Florida runs camps all year long for chronically ill children
there experienced medical staff will make sure that your child is safe
it also in Ames to make the camp experience as normal as possible
camp body creek doesn't charge anything for your child to attend
the bottom line support means a lot to those living with he living with a rare disease can be lonely scary
and frustrating that you aren't alone
talk to your friends and family about your concerns
connect with social media groups and patient ambassadors and take part and he if ants to get the support you need
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